As a caregiver, you learn the important role you fill when you speak up for your loved one. This talk by Samuel Cohen inspired me. He reminds us that our loved ones with dementia (including Alzheimer’s) are unable to advocate for a cure for themselves. And now that they are gone, I now have the time and space to help answer his call to advocate for those who suffered from this disease.
Honestly, it’s also self-interest. I aspire to be an active grandparent for my children. Because I had them later in life, I will be in my 70s most-likely when (and if) there are grandchildren. If I want to have a relationship with them, I need to know then in their teen and young adult years.By then, I will be in my 80s. Statistically, 50% of us living in our 80s will have some form of dementia if we don’t find a cure. Undertaken.
I find I continually have to advocate for sensible treatment. Our G P is excellent and very sensitive to Maureen’s needs. It is a different story with our Care Agency: it takes continual vigilance to ensure that Maureen has continuity with carers who understand dementia and how she wants to live her life..
I know your frustration! I blogged several times about how more people meant more communication. Fight on!
Reblogged this on Why Minding Your Stuff Matters and commented:
When someone needs to step in to help you–and I say when because the likelihood that this will happen if you are over 40 is close to 90 percent–having your information organized and making your sure your loved know your wishes is important. Do it while you are healthy!