Simple Steps to Safe Guard a Loved Ones Finances

After caring for two parents with dementia, I remind myself how much the checkbook meant to my mother. She had always managed the household finances and the suggestion that she was unable to manage a checkbook safely was something that needed to be left unsaid. I found that out after I said it a few times. ; <

The biggest problem I faced was a lost purse that contained the checkbook. She thought she left it in a cab, a store, at a bridge game … I couldn’t manage the hours each week spent looking for her purse. Today you can at least get a tile which would have been immensely helpful in keeping track of her handbag, but it wasn’t an option yet.

There are options to consider if your loved one would like to continue to manage their purchases:

  • Open up a new checking account and fund it with a small amount of money that can afford to be lost. I did this for my Mom. She had her checkbook, and I could move money into her account in small amounts as it needed to be replenished. If the checkbook never turned up or she had a check stolen we could easily close the account.
  • Consider setting up a TrueLink card. It is basically a credit card where you can set up limits on how much can be charged as well as products and services that it won’t fund. There is a fee for it, but the small expense is worth the money it will most likely save in potential losses.

Unfortunately, I have recently had clients both at home and living in communities be a victim of caregiver exploitation. One got my client to write her a small check, one purchased some face cream for my client and asked her for repayment of $85, and another apparently kept asking for gas money. Most agencies and communities require their caregivers agree to never accept money or gifts from clients. Should a client give them money, it needs to be reported to the community or agency. In the past month, I have reported three caregivers for violating this condition of employment. Sadly, I know they will just turn up at another agency.

What I struggled with was that this was one of the few remaining freedoms for my mom. She could no longer drive, or run the bridge games she loved, and that checkbook gave her an empowered sense of self. Now as a Daily Money Manager, I see all the ways that people are trying to get at the money of my clients.

Ultimately, someone needs to be vigilant about minding the finances as well as considering how to layer in these protections. A few bad apples spoil the lot. Reported.

Mom is back in the hospital

cargiverburnoutWhen the primary caregiver fails, it’s really hard to quickly pick up the pieces. In this case, Mom has been caring for Dad with Alzheimer’s, but now Mom has health issues that landed her in the hospital.

If the caregiver ends up in the hospital, the mad scramble from Plan B begins.  Most families are totally unprepared and it surprises me how often this happens given all the data available to educate us on how important it is to have a plan in place.

According to the Family Caregiver Alliance nearly three quarters (72%) of caregivers reported that they had not gone to the doctor as often as they should, and more than half (55%) had missed doctors appointments.

More alarming is that elderly spousal caregivers (aged 66-96) have a 63% higher mortality rate than non-caregivers of the same age.

If you have a parent who is filling this role, it’s time to sit down and have a real conversation about how to create a Plan B should something happen to them. Is there some way to help them now before a crisis? What can you do now to be prepared to easily step in if they are unable to fill the day-to-day role of caregiver?

Maybe over dinner or a cup of tea, could you ask:

  • Tell me about your average day. How often and how are you helping mom/dad?
  • If you fell and ended up in the hospital, what could I do to help mom/dad?
  • Have you found any local support groups?

Spousal support groups can really help since many will discuss how to set up Plan B as well as how to minimize the stress of caregiving. In fact, I heard these stats from a support group leader.

The best way to help is to start from a place to help the caregiver be successful. Most of the pushback I see is when the family wants to take over. Start by asking for a job you could do to help them both.

Trying to put plans into place from the hospital or from another state just creates more stress for everyone. I hope you will have an opportunity to discuss this before you may ever need to use what you learn.

If you need to get some immediate help to navigate medical issues, I hope you will look into finding a local Aging Life Care Manager. You can learn more or search for one in your area at www.aginglifecare.org.

If you want a guide to start having a conversation around what you need to step in and help, you can use this list of key documents and information you would need to help manage the finances and maintain the household.

The reality is we should all have a Plan B in place. I hope this guide will help get started. Shared.

Dementia, Emotions and Kate Swaffer Rocks

credit: kateswaffer.com
credit: kateswaffer.com

One of the constants in my mom’s care has been changing nature of the extra caregivers or personal daily assistants (PDAs) we have put in place. At her old community, we were lucky to have one that lasted more than a year, but we lost her in the move to the new facility. Out of the two that moved with her, one has already changed. I know that the changing nature isn’t good for my mom, but I understand that often these caregivers need to do what’s best for them and their families.

I stopped by to meet the new caregiver. The agency knows I’m looking for a calm, happy face that can help my mom manage in her wheelchair and help get her involved in the community activities. When I arrive my mom is lying in bed and the caregiver is sitting silently in the corner. The caregiver tells me my mom asked to take a nap after finishing lunch.

When I’m chatting with my mom, she tells me I shouldn’t be talking to other people in the room about her. I actually didn’t break rule #15 by talking about my mom in front of her, but the caregiver did and I didn’t stop it. I should have asked her to join me in the hall. I hope you will read Kate Swaffer’s “20 things not to say or do to a person with dementia.”

I found Kate’s blog several years ago and she even worked with me to answer some questions on a joint blog we created called “The Dementia Dialogue.” When I make a blunder, she will politely let me know. She’s been a great help to me and I hope you will take the time to learn more about her. She was diagnosed with younger onset dementia in 2008 aged 49. Her website kateswaffer.com is committed to meaningful dialogue with a wide range of stakeholders about the critical issues impacting a person living with a diagnosis of dementia and their loved ones.

While my mom’s dementia is pretty progressed and on a day-to-day basis she may not recognize me, she still senses a slight, reacts to energy, and emotions, and deserves to be treated with respect.

I appreciate what Kate Swaffer is doing and dream that one day I will get to tell her in person (she lives in Australia) how valuable her words and wisdom have been to me. Appreciated.