When my parents were going through the cognitive testing more than a year and a half ago, we would sit through hours of discussions with doctors who were telling my parent’s they had dementia. My mom would argue and my Dad would sit quietly. I realized that not only were my parent’s not retaining this information, but each new time the discussion began, it was as if they were learning it for the first time.
The results of the CT Scan reported Squamous Cell Carcinoma. I hoped to minimize the amount of times my Dad was going to have to hear that he had cancer. I called ahead and asked the doctor if she would speak to me after my father’s appointment alone. They call me back and tell me they will not do this. I understand why the doctor insists on this – but don’t like it.
I asked that they make sure the staff knew my Dad had dementia since the first visit is usually from a nurse who does the first screening and asks questions about medications, past surgeries and current conditions. To each question, my Dad just replies “No.” I follow-up by telling her that all the current medical information in the chart is correct. My Dad looks at me and is annoyed that I didn’t back him up on his answers.
When the doctor enters, her first question to my Dad is why were you not seeing a dentist regularly? My Dad replies that “My teeth are straight so why would I see a dentist?” I share with her the history of the last few months and tell her that no less than six weeks ago a doctor had her hands in his mouth trying to investigate my report of slurred speech. When the doctor starts to check out my Dad, even the touch of the tongue depressor is painful. She let’s us know she will need to do a biopsy and an endoscopy and it will be very uncomfortable.
My Dad sits through the tests, stoically. After the doctor finishes the review, she asks “Are you ready for the icky discussion?”
The doctor tells us that Dad has invasive cancer in his mouth and it’s tethered his tongue. The biopsy will tell us more, but given his age and low weight, treating this cancer will be difficult. We might be able to do radiation and chemotherapy, but most likely he will need a tracheotomy and feeding tube and the oncologist might not even think he is a candidate for either option.
I ask her for her recommendation on how to get my Dad comfortable. She refers us to an oncologist for palliative care to find out how we might get my Dad more comfortable. Heart-Broken.
